European Reference Network for rare adult solid cancers, statement and integration to health care systems of member states: a position paper of the ERN EURACAN

• Autoři: BLAY J.Y.; CASALI P.; BOUVIER C.; DEHAIS C.; GALLOWAY I.; GIETEMA J.; HALÁMKOVÁ Jana; HINDI N.; IDBAIH A.; KINLOCH E.; KLUMPEN H.J.; KOLAROVA T.; KOPECKOVA K.; LOVEY J.; MAGALHAES M.; OSELIN K.; PIPERNO-NEUMANN S.; RAVNSBAEK A.; ROGASIK M.; SAFWAT A.; SCHEIPL S.; SECKL M.; TAYLOR J.; TEMNYK M.; TRAMA A.; URBONAS M.; WARTENBERG M.; WEINMAN A.
• Rok publikování: 2021
• Druh: Článek v odborném periodiku
• Časopis / Zdroj: ESMO OPEN
• Fakulta / Pracoviště MU: Lékařská fakulta
• www: https://www.sciencedirect.com/science/article/pii/S2059702921001344?via%3Dihub
• Doi: http://dx.doi.org/10.1016/j.esmoop.2021.100174
• Klíčová slova: ERN; European Reference Network; EU; European Union; EURACAN; ESMO; solid cancers
• Popis: A better understanding of the biology of rare cancers, an improved access to optimal diagnosis, to effective therapies, and to evidence-based treatment guidelines will all improve the outcome of patients with rare cancers. Still, disparities exist across Europe between countries and regions, with heterogeneous patient pathways, and different points of access contacted for initial health care management. Health migration issues also need to be addressed to reduce inequities in care for the European patient.

Související projekty

• Český národní uzel Evropské sítě infrastruktur klinického výzkumu (CZECRIN)